Thursday (yesterday) Lyllah went to the hospital for tests. Here is the update from her mom:
Ok, so the blood work is back and the number that tests her kidney function has gone from 2.6 to 5.6 which means her kidney function is low. What that means for us is that she may not be able to flush out the chemo fast enough and that would in turn make it toxic. So we have to return on Monday and try again. - Becca
We would appreciate your thoughts and prayers. Thanks for all of your support it means a great deal to all of us.
About all I can think of right now is Delilah. She had a chemo treatment on Monday and has been throwing up all night. Becca (her mom-my daughter) is snoozing when she can because she's exhausted. Michael (her dad) feels helpless to do anything. Plus a few nights ago someone raced down their street at midnight and totalled their car. They are feeling a lot overwhelmed. As helpless as they feel, I do too because there is nothing I am capable and/or are able to do for them.
I just keep praying. Thank you for your prayers and/or good thoughts. They are much appreciated.
Well, let's see who am I updating? My poor daughter's family are going through quite a few struggles recently. I hope you have time for a prayer and/or good thoughts. Thank you.
Michael (Lyllah's dad):
Early Friday (13th) morning he was taken to the ER with heart related concerns. The doctors were able to rule out a heart attack but we don't have any further explanation regarding his heart's distress. Michael's oxygen levels are a low 30 at times and his heart rate falls to the 30's as well. His chest remains extremely tight and when he attempts to stand up, he gets dizzy and both his blood pressure and heart rate sky rocket.
History: He suffers from Congential Heart Diseas resulting in 3 open heart surgeries beginning at birth. He also underwent a successful Mustard Valve procedure. He is basically a legend at the local hospital.
Anyhow, his specialist was never notified of his hospitalization and came to see Michael after his office hours, bless him. Michael was released from the hospital the following Tuesday after inconclusive results and had an appointment on Thursday with the specialist.
At the doctor's office, doc came in and told them that he did not find anything new from the last time he saw Michael a year ago. He is still going to look over the MRI taken from the hospital. Doc believes that the symptoms that he is having are stemmed from his migraine and wrote him an Rx for it. He also wrote Michael an excuse for work Friday just incase it lingers through then. If the migraine continues through Monday, he is to contact his primary care for a sick appointment. If the migraine goes away but he continues to have symptoms of low blood pressure when he stands (dizziness), he is supposed to call the hospital cardiology back on Monday (6/23).
That's all we know for now.
Lyllah meanwhile is about the same and due for another clinic appointment on Wednesday (6/25).
Thank you for your support. We sure do appreciate everything.
Cathryn (who is one worried mother/grandmother)
There will be a monthly SAL contest with a PRIZE. :) The rules are:
1.Pictures of your completed stitching must be sent directly to me at my email (keeping in mind your piece must be complete at least in stitching – framing, ornaments etc. is optional) However, I would LOVE to have a completed, finished picture.
2.This SAL will be combined with my stitching group members too.
3.The pictures will be featured in my newsletter and possibly on my website (credit going to your first name and last initial, i.e. Cathryn M.).
4.Pictures will be due 3 days before the end of the month (in order to get them in the newsletter before it’s sent out).
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Good Luck! I hope this will be fun and you will participate. :)
Lyllah's fevers ran a rollercoaster all night- up & down. She also was shaking uncontrollably but yelling at me that she was not when I would ask about it. She didn't go to sleep until 4:30 or 5 am and then woke up for the day at 8. Michael and i are both exhausted and Delilah just keeps going like the Energizer bunny... I never did like that rabbit... (singing like Elmer Fudd to the tune of Valkyrie) "Kill tha wabbit! Kill tha wabbit! Kill tha wabbit!..." Ok so here are the numbers: The ANC is down to 20 from 90. The hemoglobin is also down to 8.1 from 10. Delilah's las recorded fever was at 3 am. Our goals: ANC above 200. Fever free for 24 hours. The blood cultures were taken yesterday at 11 am and take 48 hours for complete results. We need those results back negative to leave too. Also, if her hemoglobin drops below 8 she will require blood. See more at http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/177903#sthash.iCN6v9RR.dpuf
Delilah is back in the hospital. Her ANC numbers are low and she's running a fever. They will do tests and give her a dose of chemo today to see what's going on. Thank you for your prayers and support for all of us especially Delilah and her parents and siblings.