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Tuesday, December 30, 2014

Delilah's Quilt

I have the most wonderful group of online stitchers I belong to and they did the most AWESOME thing!  They made a 'comfort' quilt for my beautiful granddaughter who was diagnosed with leukemia.  The following are some pictures I took:  [PICTURE HEAVY]

The following two photos show the front of the quilt with some wonderful stitchy pieces laying against the back of the quilt.


The following are some individual pictures including the stitchy pieces.  My dear stitching sisters I hope you can find yours.






















God Bless you all ladies.  What a wonderful thing you have done and have touched my heart so deeply.

Love, hugs & prayers,
Cathryn

Wednesday, December 24, 2014

December 24, 2014

Everywhere, everywhere, Christmas to-night!
Christmas in lands of the fir tree and pine,
Christmas in lands of the palm tree and vine;
Christmas where snow-peaks stand solemn and white,
Christmas where corn-fields lie sunny and bright;
    Everywhere, everywhere, Christmas to-night.

Christmas where children are hopeful and gay,
Christmas where old men are patient and gray,
Christmas where peace, like a dove in its flight,
Broods o'er brave men in the thick of the fight;
    Everywhere, everywhere, Christmas to-night.

For the Christ-child who comes is the Master of all,
No place too great and no cottage too small;
The Angels who welcome Him sing from the height,
"In the city of David, a King in His might."
    Everywhere, everywhere, Christmas to-night.

Then let every heart keep its Christmas within
Christ's pity for sorrow, Christ's hatred for sin.
Christ's care for the weakest, Christ's courage for right,
Christ's dread of the darkness, Christ's love of the light.
    Everywhere, everywhere, Christmas to-night.

So the stars of the midnight which compass us round
Shall see a strange glory, and hear a sweet sound,
And cry, "Look! the earth is aflame with delight,
O sons of the morning, rejoice at the sight."
    Everywhere, everywhere, Christmas to-night.

-Sheet Music from 
Rev. Charles Lewis Hutchins, 
Carols Old and Carols New 
(Boston: Parish Choir, 1916), 
Carol 368

Monday, December 22, 2014

Merry Christmas

As the holy season approaches may God richly bless you and yours with an abundance.

Love, hugs & prayers,
Cathryn

Tuesday, November 25, 2014

Wishing

Wishing you all the opportunity to make new memories with family and friends and that you will have many things to be thankful for as ... "We Gather Together".

Happy Thanksgiving!

With love and gratitude,
Cathryn




©Blueladie Designs 2014

Friday, October 31, 2014

Happy Halloween!

Hope yours is not tricky and filled with lots of treats!!!  :D

Thanks for stopping by,
Cathryn

Tuesday, October 28, 2014

Update

Just learned that Delilah was admitted to Children's Hospital for observation with 101* fever.

Granddaughter

Yesterday, Delilah and her mom were at the outpatient part of hospital getting a 4 hour transfusion for Delilah as her numbers were low (from the chemo).  They now have to watch her carefully for a fever in which case she will have to be hospitalized for observation.  This is so overwhelming for all of the family.

thanks for stopping by,
Cathryn

Tuesday, October 7, 2014

Delilah Update

Delilah's ANC numbers are all right and this morning she gets admitted to Children's Hospital for a large dose of chemo.  Please pray with us.

Thank you so much.
Cathryn

Thursday, October 2, 2014

The Blueladie Designs Newsletter

... went out October 1st.  Did you get yours?  For subscription information, please see my website (link above) and look for subscription information on the Home page of my website.

Thanks for stopping by,
Cathryn

Tuesday, September 30, 2014

Cancelled Again

Well again my granddaughter's ANC numbers were too low so the procedure was cancelled again this week and is rescheduled for next week.  Please keep her in your prayers.  Thank you so much.

Saturday, September 27, 2014

Granddaughter Update

Delilah missed a chemo treatment last week because her numbers were too low.  She is having a blood draw on Monday and hopefully her numbers will be ok.  If so, she will be admitted to the hospital at 6:30 am Tuesday morning for an intense (surgical type) chemo administration; after which she will remain hospitalized for 24 hours so they can watch her and be sure she's ok.

We are all a little nervous about it and hopefully things will go smoothly.

Thanks for stopping by and your inquiries about Delilah.

Cathryn

Monday, September 15, 2014

The Counted Wishes Festival

is now open:

www.countedwishes.com

I hope you will come have a look at all the goodies and join the fun.  It runs from the 15th (today) through the 21st (Sunday).  :)


Friday, August 22, 2014

A Worthy Cause

Belinda from Blue Ribbon Designs has created a beautiful design for you in thanks for a donation to the Susan G. Komen 3-day walk she is participating in.  You can see the details here on her site.

Wednesday, August 13, 2014

Delilah's numbers good

Thank you all for your prayers.  She was able to receive her regular chemo treatment this past Monday.  I've posted the picture of her below right.  :)

Thanks for stopping by,
Cathryn

Friday, August 8, 2014

Delilah Update

Thursday (yesterday) Lyllah went to the hospital for tests.  Here is the update from her mom:

Ok, so the blood work is back and the number that tests her kidney function has gone from 2.6 to 5.6 which means her kidney function is low.  What that means for us is that she may not be able to flush out the chemo fast enough and that would in turn make it toxic.  So we have to return on Monday and try again. - Becca

We would appreciate your thoughts and prayers.  Thanks for all of your support it means a great deal to all of us.

Cathryn

Friday, August 1, 2014

The Blueladie Designs Newsletter

is out!  Did you get yours?  To subscribe click on my website link above and look for instructions for newsletter.  :)  Have a great weekend.

Cathryn

Wednesday, July 30, 2014

Delilah

About all I can think of right now is Delilah.  She had a chemo treatment on Monday and has been throwing up all night.  Becca (her mom-my daughter) is snoozing when she can because she's exhausted.  Michael (her dad) feels helpless to do anything.  Plus a few nights ago someone raced down their street at midnight and totalled their car.  They are feeling a lot overwhelmed.  As helpless as they feel, I do too because there is nothing I am capable and/or are able to do for them.

I just keep praying.  Thank you for your prayers and/or good thoughts.  They are much appreciated.

Cathryn

Friday, July 18, 2014

Reminder Regarding BLD SAL

There's only 11 more days to submit a picture of your entry for the JULY Blueladie Designs SAL to me.  Rules are here.

Tuesday, July 1, 2014

The Blueladie Designs Newsletter

has gone out.  See my website (link above) on information on how to receive yours, if you already aren't receiving it.

The winner of the June 2014 SAL is Beaj.  Please email me your addy so I can send your prize.  Thank you to all who entered.  I hope you will consider entering July's SAL.  See rules here.

Thanks for stopping by,
Cathryn

Tuesday, June 24, 2014

Just One More Week - Entries Due by Saturday

for the Blueladie Designs SAL Contest.  Rules are here.

Good Luck!  :)

Cathryn

Friday, June 20, 2014

Update

Well, let's see who am I updating?  My poor daughter's family are going through quite a few struggles recently.  I hope you have time for a prayer and/or good thoughts.  Thank you.

Michael (Lyllah's dad):

Early Friday (13th) morning he was taken to the ER with heart related concerns.  The doctors were able to rule out a heart attack but we don't have any further explanation regarding his heart's distress.  Michael's oxygen levels are a low 30 at times and his heart rate falls to the 30's as well.  His chest remains extremely tight and when he attempts to stand up, he gets dizzy and both his blood pressure and heart rate sky rocket.

History:  He suffers from Congential Heart Diseas resulting in 3 open heart surgeries beginning at birth.  He also underwent a successful Mustard Valve procedure.  He is basically a legend at the local hospital.

Anyhow, his specialist was never notified of his hospitalization and came to see Michael after his office hours, bless him.  Michael was released from the hospital the following Tuesday after inconclusive results and had an appointment on Thursday with the specialist.

At the doctor's office, doc came in and told them that he did not find anything new from the last time he saw Michael a year ago.  He is still going to look over the MRI taken from the hospital.  Doc believes that the symptoms that he is having are stemmed from his migraine and wrote him an Rx for it.  He also wrote Michael an excuse for work Friday just incase it lingers through then.  If the migraine continues through Monday, he is to contact his primary care for a sick appointment.  If the migraine goes away but he continues to have symptoms of low blood pressure when he stands (dizziness), he is supposed to call the hospital cardiology back on Monday (6/23).

That's all we know for now.

Lyllah meanwhile is about the same and due for another clinic appointment on Wednesday (6/25).

Thank you for your support.  We sure do appreciate everything.
Cathryn (who is one worried mother/grandmother)

Monday, June 16, 2014

More

Delilah's father is in the ER having tests done after being sick and having some paralyzation.  EKG's, blood work, etc.  They have so much to deal with.  Please pray.

Cathryn

Sunday, June 15, 2014

Delilah Update

Delilah is home from the hospital just in time for Father's Day and in Delilah's words "God's day".  Out of the mouth of babes.  She also believes that Father's Day is God's day.  Bless her.

Thank you all so very much for your continued prayers and support as we keep walking this journey.

Love, hugs & prayers,
Cathryn

Friday, June 13, 2014

New Monthly BLD SAL with Prize (second notice)

There will be a monthly SAL contest with a PRIZE.  :)  The rules are:

1.      Pictures of your completed stitching must be sent directly to me at my  email (keeping in mind your piece must be complete at least in stitching  – framing, ornaments etc. is optional)  However, I would LOVE to have a completed, finished picture.
2.     This SAL will be combined with my stitching group members too.
3.     The pictures will be featured in my newsletter and possibly on my website (credit going to your first name and last initial, i.e. Cathryn M.).
4.    Pictures will be due 3 days before the end of the month (in order to get them in the newsletter before it’s sent out).
5.     Qualifying charts MUST be a Blueladie Designs chart (i.e. newsletter freebie or newly released monthly chart).
6.    Winners will be chosen by LUCK OF THE DRAW.  Everyone has an equal chance to win as long as the rules are followed.

Starting NOW!  GO!  :D

Good Luck!  I hope this will be fun and you will participate.  :)

Cathryn

Wednesday, June 11, 2014

Update from Rebecca / Mommy (of Delilah)

Lyllah's fevers ran a rollercoaster all night- up & down.  She also was shaking uncontrollably but yelling at me that she was not when I would ask about it.  She didn't go to sleep until 4:30 or 5 am and then woke up for the day at 8.  Michael and i are both exhausted and Delilah just keeps going like the Energizer bunny... I never did like that rabbit... (singing like Elmer Fudd to the tune of Valkyrie) "Kill tha wabbit! Kill tha wabbit! Kill tha wabbit!..."  Ok so here are the numbers:  The ANC is down to 20 from 90.  The hemoglobin is also down to 8.1 from 10.  Delilah's las recorded fever was at 3 am.  Our goals:  ANC above 200.  Fever free for 24 hours.  The blood cultures were taken yesterday at 11 am and take 48 hours for complete results.  We need those results back negative to leave too.  Also, if her hemoglobin drops below 8 she will require blood.  See more at http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/177903#sthash.iCN6v9RR.dpuf

Cathryn (Grandma)

Back in the Hospital

Delilah is back in the hospital.  Her ANC numbers are low and she's running a fever.  They will do tests and give her a dose of chemo today to see what's going on.  Thank you for your prayers and support for all of us especially Delilah and her parents and siblings.

Cathryn

Monday, June 9, 2014

Update on last Clinic Visit for Delilah

From Delilah's mom:

Wednesday's appointment proved successful... somewhat.
Mia the Muppet with a port was brought back again for Lyllah to play with along with other toys. The numbing cream was applied and we waited. A team of 3 nurses came in again, just like last week. But this week was quick and they successfully got blood to test. So we waited more. Then we found out her ANC is very low and we need to keep the contact she receives in a controlled environment which means stay home, limit visitors to few at a time and healthy. This also meant no chemo treatment this week so her first round of this section of chemo is delayed for a week. So from next Wednesday on, Lyllah will only need to be seen in clinic for a chemo treatment through her port every ten days or so. This means there will be entire weeks of time between appointments! We have the whole week of July 4th appointment free! Then we have the first two weeks in August off. After that is the stage called delayed intensive care. And from what we're told, it's just that... intense. We'll be going to clinic 2 times a week.



Sunday, June 8, 2014

Thank you note

From my granddaughter’s (who has Leukemia) parents:

   “We have such gratitude to all of Lyllah’s supporters.  With so much information to absorb and adjusting to the new normal, we hope it is understood that what all of you do does not go unappreciated.  We are so completely overwhelmed  by the abundance of charity, well-wishes and prayers.  We thank God for surrounding us with so many circles; family, friends, friends of family, families of friends, friends of friends… the ripples just keep reaching outwards to, now, complete strangers.  All of you are messengers of God, doing His work and we are truly blessed to be connected to all of you; your prayers and positive thoughts toward our sweet little daughter.  We cannot express enough how much even just the unannounced prayer means to us.
   “ ‘ Again, truly I tell you that if two of you on earth agree about anything they ask for, it will be done for them by my Father in heaven.  For where two or three gather in my name, there I am with them.’ ~ Jesus   Matthew 18:19-20, NIV
   “With all of these voices lifting up our daughter’s name, God surely hears us. 
   “All of your gifts have made a huge impact on Delilah’s ability to cope as well as our family’s.  God bless you, each one.


Michael & Rebecca T.”

Friday, June 6, 2014

New Monthly Blueladie Designs SAL with PRIZE

There will be a monthly SAL contest with a prize.  The rules are:

1.      Pictures of your completed stitching must be sent directly to me at my  email (keeping in mind your piece must be complete in stitching only – not framing, ornaments etc.)  If you so desire to send a picture after a finished product (framed, ornament, bell pull, etc; I would LOVE to have it.
2.     This SAL will be combined with my stitching group members too.
3.     The pictures will be featured in my newsletter and possibly on my website (credit going to your first name and last initial, i.e. Cathryn M.).
4.    Pictures will be due 3 days before the end of the month (in order to get them in the newsletter before it’s sent out).
5.     Qualifying charts MUST be a Blueladie Designs chart (i.e. newsletter freebie or newly released monthly chart).

6.    Winners will be chosen by LUCK OF THE DRAW.  Everyone has an equal chance to win as long as the rules are followed.

Good Luck!  I hope this will be fun and you will participate.  :)

Cathryn

Monday, June 2, 2014

Blueladie Designs June Design

©Blueladie Designs 2013
Sing Joyfully All the Earth

This can be found on the website (link above) pg. 11.

Sunday, June 1, 2014

Blueladie Designs Newsletter

went out last night.  If you aren't currently receiving the newsletter and would like to, please see my website (link above) for directions on how to subscribe.  :)  Have a Sunny Sunday and Happy Stitching.

Cathryn

Thursday, May 29, 2014

Delilah Update

From Delilah's mom (my daughter):
Lyllah's appointment yesterday was scheduled for 1pm.
All of her previous appointments in this section of the treatment haveinvolvedher being put under anesthesia for a lumbar puncture to administer chemo so we prepared for this appointment the same way with cutting her off from food 8 hours before and clear liquid diet 4 hours before.

So we woke up just before 9am for a breakfast of black cherry Jello and water before her cut off time.  We left a noon, arrived at the appointment and checked in.  Lyllah entertained herselfin the waiting room with a holographic projector game of soccer on the floor.  After registration, got a room right away.  Then the fun began.

Lyllah started off the appointment whining because she had to leave the game.  Our doctor found our room without having to check the charts because she could hear Lyllah.  In an effort to help, our doctor offered to walk Lyllah to the child life room to pick out some toys to bring back to the room to play with.  Lyllah overwhelmed with choices and wanting to bring everything, began to go into hysterics when we stopped her from picking out toys because she had enough.  Back inthe room with the first picks, Lyllah continued to kick, scream, claw and even bite Michael (her dad) who decided to take her for a walk, calm her down while the doctor and I talked about the future treatments.

We discussed medication refills, the uncertainty that comes with the first port access and the possibility of family counselling to help us all cope with the extreme changes occurring in our lives.

Near the end of discussion Michael returned with a weepy Lyllah who wanted her mama.  After holding and comforting her briefly, Lyllah was back to her playful self wanting to explore the toys we had brought back to the room.  The nurse came in to apply a strong, fast acting numbing cream (which I got to apply because Lyllah instructed, "I want mommy to do it.")  The cream starts working in 10 minutes but they wait 30 to be safe.  During that 30 minutes a child life nurse came with a giant, pink puppet, that resembleda Jim Hensen muppet that had a port in it and a doctor's kit for Lyllah to play with (under supervision) to help explain to her what we were going to do today.

During this educational time for Lyllah I found out from the nurse that she would not be going under today and she could've been eating.  They promptly ordered her a tray of spagetti and meatballs with a banana on the side with goldfish crackers and apple juice to snack on while she waited.  After getting to eat and play with the Muppet, a team of 3 nurses came in for the first port access.

One was the child life nurse armed with an iPadfor distraction, another was there to hold Lyllah down with me and Michael and the third was of course doing the access.  The next few minutes seemed like hours of Lyllah screaming and pleading with all of us to let her go.  The nurse stuck her the first time and was able to flush but not draw any blood (it was later explained the first needle was to long and created suction against the wall of the artery).  They stuck yet again (this time with a shorter needle) but still could not draw back any blood.

It was decided at this point that the port was partially blocked by a clot and to stop trying to access it and talk to the doctor about where to go from there.  After holding Lyllah and soothing her, the child life nurse continued to play with Lyllah so Michael and I could talk to our medical team.

We had 3 options:
1) access the port to put in an anti-clotting agent (which would take 2 hours) and then try again.
2) Come back Friday to try the same procedure
3) Draw blood with a butterfly needle now and try the access next Wednesday.

It was already 5pm and money is tight so we wanted to avoid an extra trip so we opted for choice 3.  We had to pin Lyllah down again for a blood draw (by this time the 3 of us are exhausted from the afternoon) and the nurses prepared us to leave.

The nurses and doctors assured us that this was not a typical first access and next week should go more smoothly now that they know what to expect (and what size needle to use).

The only worry now is the trauma Lyllah went through will not be easily forgotten.  We'll just have to see what next week brings.

My mind's scarred from trying to remember all the detailsof this.  Updates tocome soonof the summer schedule/treatment plan.

***********

Lyllah got some girly time with big sis, Destiny, painting nails, drinking hot chocolate, and watching a movie. Today's looking better and better. And no, there is nothing wrong with Lyllah's forehead. She insisted on putting a band-aid on her "short-cut." The moments that make us smile make the rough times worth it.

Monday, May 26, 2014

Remember the Fallen

Remember the Fallen
Memorial Day 2014
©Blueladie Designs 2014

Sunday, May 25, 2014

Delilah

Many of you have been writing me asking about Delilah.  She is the same and 'holding her own'.  She is still in phase 2 treatment.  She gets chemo once a week and a home nurse comes to take blood for tests.  Yes the chemo is still by spinal at the hospital on an outpatient basis.  She is very upbeat, has good and not so good days and her mother calls her 'Miss Independent'.  She wants to do everything herself.  ;)

Thank you continually for all your prayers and caring.

Cathryn

Wednesday, May 14, 2014

I Can't Even Begin to Tell you...

How Hard this is on the family.  The following was posted by my daughter and says it best in her own words.

5/14
That was THE WORST ordeal we've been through thus far. Simple procedure. Been through it before. Except this time she was still asleep when we were brought back to her bedside. We were told we could start waking her up. BAD IDEA. She started off as she normally did being grumpy, not wanting to be touched then eventually calling for me. But then as I held her she started fighting again, pushing away, screaming, crying. She clawed me, leaving a small mark on my hand. OR called for transport, thinking when we were back in the room She would calm down. I held her for the wheelchair ride up. She was rigid and screaming and fighting the whole way. I had to wrap her arms in her blanket to restrain her from hurting me or herself. Got to the room. Lay her in bed. She starts trying to throw herself from the bed, head first. Michael has me leave the room at this point for a break because this is wearing on me. I get a cup of coffee and sit down in the main concourse across from the elevators. Michael calls me within 30 minutes. She still has not calmed down and he needs my help. I come back to find that she's been clawing both Michael and herself and banging her head on the guardrail of her bed. At this point we have to fully restrain her... ourselves. So I lay down next to her and wrap my legs around her legs to keep her from kicking and hold on to each one of her little wrists, holding her hands apart, so she can't claw me or herself. At this point we've been fighting Lyllah for 30 to 45 minutes and we ask for her to be given something to calm her down. As the Oncology team begins to contact the operation and anesthesia doctors to make sure that what they want to give her won't make her condition worse, Lyllah continues to fight full force. I don't remember exactly what happened in what order but at one point I let go of one of Lyllah's hands to get a hold of her legs again and she stuck her thumb straight into her mouth and bit down like she was trying to bite it off. Another thing was her screaming "stupid!" and some obscenities and then crying "this is not me!" All I could do was hold her and pray. After another 45 minutes of waiting on the docs to put in an order for some calming meds, she finally passed out. At this point I was in a rocking chair, holding her. She slept for only about 5 minutes and Michael took her out of my arms to place her on her bed. She woke, whispering, asking for her blankie, tv, a drink and some food. Our sweet little was back just like that. She had to potty and her poor little legs were so worn out she couldn't even stand. She did eat (blueberry bagel with cream cheese and the top of a blueberry muffin and Apple juice box, "2 please"). We had her dressing change done (another fight but the poor thing was too exhausted to do much more than cry) and then she slept in my arms as we waited to be discharged. We're home now. Lyllah's awake and quiet, watching cartoons, holding her blankie, pretzels and sippy with water in it. 

Cathryn

Update on My Grandaughter

Update from her mom (my daughter):

Saturday 5/10
Princess Delilah is back in the hospital – she was admitted over the weekend. She is repeatedly spiking fevers and turning red. Cincinnati Children's Hospital Medical Center is going to take her PICC line out on Tuesday and surgically install her port...

Tuesday 5/13
After having a fever last night, the doctors decided to reschedule her port placement until next week (exact date & time TBA). She will still go under tomorrow as scheduled for her spinal tap chemo treatment. Not sure of when she will be discharged. This depends on how quickly she can get off the IV drip (this will be determined by how much she eats and drinks in a daily period) and also they are still trying to determine the cause of the fevers. A few things they are trying is to take her off of her antibiotics (which the docs believe it's causing her diarrhea) to see if the fever returns or not. Another is they are going to take a closer look at the severe rash on her bottom (caused by the frequent diarrhea) to see if she has a skin yeast infection that wouldn't show up in the urine. Also, she's been complaining of a pimple hurting her ear. The doctor had observed this but it's not concerned unless it busts open and bleeds. Having been lethargic and clingy before we brought her in, today is a relief with her feeling better and being more happy and active.

Wednesday 5/14
All procedures for today (Spinal Tap & Chemo) have been placed on hold due to the fever, concern over infection. 
Delilah is slated to get the Spinal Tap & Chemo tomorrow and the port next week, possibly.

Delilah ordered breakfast: Fruit Loops with milk, blueberry bagel with cream cheese (cut up, please) and a blueberry pop tart (just in case).
I guess she's feeling fruity! Lol

She ate half of her bagel for breakfast. She is off her fluids for good as long as she eats and drinks good. She also has been on the go all day. 

As always, your support and prayers are awesome and most appreciated by all of us.

Cathryn

Sunday, May 11, 2014

Delilah Update

Delilah has low hemoglobin so they are going to give her a blood transfusion.  They are still checking for infections because of her fever and she is due for a picc/port change so they will keep her until Tuesday at least.

Thank you for your continued prayers and support.
Delilah's grandmother

Saturday, May 10, 2014

One step forward and two steps back

Princess Delilah has been spiking a fever since yesterday on and off trips to ER.  They are going to admit her tonight until they find out what's wrong.  (Initially they gave her antibiotics- fever broke, but now it's back again.)

Thank you for your prayers.  They are most welcome and appreciated.

Cathryn

Wednesday, May 7, 2014

Princess Delilah Update

Update from Rebecca / Mommy
#Quote
"Today was Delilah's spinal tap to administer some chemo. She also received some Vincristine (another chemo) through her PICC and was sent home with what's referred to as MP6 – a chemo that is taken orally for the next 28 days. Delilah woke from the anesthesia in a rather good mood (no one was sent to the corner, LOL). 
After an early, exhausting morning, she is now resting peacefully.

During her nap we had an exciting phone call from get doctor: Delilah's bone marrow final screen came back and she's officially in remission!

Note: There still may be a few lurking around in there but not enough to be easily found. What this means is her first month's s treatment in the hospital was a success and we will stay on schedule with her treatments to prevent it from coming back.

Next week, Tuesday, we go in for Delilah's PICC to be removed and replaced with a port. This will be a small disk placed over the top of her heart that will make access for blood draws and administration of chemo easier and allow Delilah to not have so many physical restrictions (such as no swimming). The procedure will take approximately an hour and is scheduled for 1pm.

The hardest part for Delilah is no eating 8 hours before-hand.

We will have to arrive at the hospital at 11am for pre-op preparations." #EndQuote
- See more at: http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/162519#sthash.I0C54vOQ.dpuf

Tuesday, May 6, 2014

Princess Delilah Update

Posted Monday, May 5th:

Update on Princess Delilah:
Delilah has been more active and being more happy everyday. After a busy weekend being out of the house she never wanted to come home. But when it home she enjoys playing with her dress ups and coloring books especially her brother and sister.
Delilah still has insecure moments when she cries or gets frustrated but those are less and less as the days go on.
Tomorrow, Delilah will have a visit from home care who will draw her blood and then on Wednesday she has her procedure for her spinal tap (which will administer her chemo) and her bone marrow biopsy (to check for relapses).
Thank you to everyone who is keeping us in your prayers.
Like ·  · 

Sunday, May 4, 2014

Friday, May 2, 2014

Delilah's First Day Home

Still receiving thoughtful packages!










Destiny falling asleep - glad to have her sister home.


Delilah Went Home Yesterday!

Praise God!
One step in the journey completed.  Now on to the next!  Weekly trips for tests and treatment plans.

We can't even begin to tell you how grateful we are for your prayers and support and ask that you continue through this next phase.  Thank you so VERY much!!!

Cathryn

Thursday, May 1, 2014

Blueladie Designs Newsletter & May Design

Is out.  See the website (link above) for subscription information.

This is the new design:
© Blueladie Designs 2013

Monday, April 28, 2014

Got a HUGE delivery today!  Lyllah's so excited.  The hats and scarves have started to come in along with some rather large packages.  Haven't been able to wade through it all yet but here's some first glimpses.

Saturday, April 26, 2014

Update from Rebecca/mommy

Update from Rebecca/Mommy
"UPDATE: Lyllah's blood counts are all back to normal. Her ANC is a whopping 1690. She is off fluids during the day from 9 to 9 and she is allowed out in public without a mask. Oh and of course the best news is we're out of here on Thursday!

What's Happening Now
Today, Delilah walked to the cafeteria, without a mask and without fluids, for the FIRST time in 30 days!
Delilah is currently suffering from "chemo brain"- meaning she is off-balance and dizzy. The doctors say that this will eventually go away when the chemo ends.

Looking Ahead
Once a week, for the entire month of May, Delilah will undergo a Spinal Tap and bone marrow tests at Children's Hospital.
Delilah will have her PICC line removed and a port installed beneath her skin. It will be critical that her environment be and remain sterile. Michael and Rebecca (mom and dad) have been informed that Delilah may temporarily require a feeding tube when she goes home. They say this is very common. We would love for her to use Liquid Hope (organic whole foods meal replacement) - we are sorting out the insurance information right now.
http://functionalformularies.com/#sthash.P6blUWhz.dpbs
-See more at: http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/157460#sthash.NFNDKGkA.dpuf

From out family to yours:  our appreciation and gratefulness are beyond words at this time.  May you and yours be abundantly blessed for all your generosity in donations and prayers.

Cathryn

Friday, April 25, 2014

Solidarity

Lyllah loses her hair and mom and dad are in solidarity with her, but she is not happy.