Update on My Grandaughter

Update from her mom (my daughter):

Saturday 5/10

Princess Delilah is back in the hospital – she was admitted over the weekend. She is repeatedly spiking fevers and turning red. Cincinnati Children's Hospital Medical Center is going to take her PICC line out on Tuesday and surgically install her port...

Tuesday 5/13

After having a fever last night, the doctors decided to reschedule her port placement until next week (exact date & time TBA). She will still go under tomorrow as scheduled for her spinal tap chemo treatment. Not sure of when she will be discharged. This depends on how quickly she can get off the IV drip (this will be determined by how much she eats and drinks in a daily period) and also they are still trying to determine the cause of the fevers. A few things they are trying is to take her off of her antibiotics (which the docs believe it's causing her diarrhea) to see if the fever returns or not. Another is they are going to take a closer look at the severe rash on her bottom (caused by the frequent diarrhea) to see if she has a skin yeast infection that wouldn't show up in the urine. Also, she's been complaining of a pimple hurting her ear. The doctor had observed this but it's not concerned unless it busts open and bleeds. Having been lethargic and clingy before we brought her in, today is a relief with her feeling better and being more happy and active.

Wednesday 5/14

All procedures for today (Spinal Tap & Chemo) have been placed on hold due to the fever, concern over infection. 

Delilah is slated to get the Spinal Tap & Chemo tomorrow and the port next week, possibly.

Delilah ordered breakfast: Fruit Loops with milk, blueberry bagel with cream cheese (cut up, please) and a blueberry pop tart (just in case).

I guess she's feeling fruity! Lol

She ate half of her bagel for breakfast. She is off her fluids for good as long as she eats and drinks good. She also has been on the go all day. 

As always, your support and prayers are awesome and most appreciated by all of us.

Cathryn

Delilah Update

Delilah has low hemoglobin so they are going to give her a blood transfusion.  They are still checking for infections because of her fever and she is due for a picc/port change so they will keep her until Tuesday at least.

Thank you for your continued prayers and support.
Delilah's grandmother

One step forward and two steps back

Princess Delilah has been spiking a fever since yesterday on and off trips to ER.  They are going to admit her tonight until they find out what's wrong.  (Initially they gave her antibiotics- fever broke, but now it's back again.)

Thank you for your prayers.  They are most welcome and appreciated.

Cathryn

Princess Delilah Update

Update from Rebecca / Mommy
#Quote
"Today was Delilah's spinal tap to administer some chemo. She also received some Vincristine (another chemo) through her PICC and was sent home with what's referred to as MP6 – a chemo that is taken orally for the next 28 days. Delilah woke from the anesthesia in a rather good mood (no one was sent to the corner, LOL). 

After an early, exhausting morning, she is now resting peacefully.

During her nap we had an exciting phone call from get doctor: Delilah's bone marrow final screen came back and she's officially in remission!

Note: There still may be a few lurking around in there but not enough to be easily found. What this means is her first month's s treatment in the hospital was a success and we will stay on schedule with her treatments to prevent it from coming back.

Next week, Tuesday, we go in for Delilah's PICC to be removed and replaced with a port. This will be a small disk placed over the top of her heart that will make access for blood draws and administration of chemo easier and allow Delilah to not have so many physical restrictions (such as no swimming). The procedure will take approximately an hour and is scheduled for 1pm.

The hardest part for Delilah is no eating 8 hours before-hand.

We will have to arrive at the hospital at 11am for pre-op preparations." #EndQuote

- See more at: http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/162519#sthash.I0C54vOQ.dpuf

Princess Delilah Update

Posted Monday, May 5th:

Update on Princess Delilah:
Delilah has been more active and being more happy everyday. After a busy weekend being out of the house she never wanted to come home. But when it home she enjoys playing with her dress ups and coloring books especially her brother and sister.
Delilah still has insecure moments when she cries or gets frustrated but those are less and less as the days go on.
Tomorrow, Delilah will have a visit from home care who will draw her blood and then on Wednesday she has her procedure for her spinal tap (which will administer her chemo) and her bone marrow biopsy (to check for relapses).
Thank you to everyone who is keeping us in your prayers.

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Be Kind to Animals Week

May 4th through 10th.   :)

Delilah's First Day Home

Still receiving thoughtful packages!

Destiny falling asleep - glad to have her sister home.

Delilah Went Home Yesterday!

Praise God!
One step in the journey completed.  Now on to the next!  Weekly trips for tests and treatment plans.

We can't even begin to tell you how grateful we are for your prayers and support and ask that you continue through this next phase.  Thank you so VERY much!!!

Cathryn

Blueladie Designs Newsletter & May Design

Is out.  See the website (link above) for subscription information.

This is the new design:

© Blueladie Designs 2013

Got a HUGE delivery today!  Lyllah's so excited.  The hats and scarves have started to come in along with some rather large packages.  Haven't been able to wade through it all yet but here's some first glimpses.

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Update from Rebecca/mommy

Update from Rebecca/Mommy
"UPDATE: Lyllah's blood counts are all back to normal. Her ANC is a whopping 1690. She is off fluids during the day from 9 to 9 and she is allowed out in public without a mask. Oh and of course the best news is we're out of here on Thursday!

What's Happening Now
Today, Delilah walked to the cafeteria, without a mask and without fluids, for the FIRST time in 30 days!
Delilah is currently suffering from "chemo brain"- meaning she is off-balance and dizzy. The doctors say that this will eventually go away when the chemo ends.

Looking Ahead
Once a week, for the entire month of May, Delilah will undergo a Spinal Tap and bone marrow tests at Children's Hospital.
Delilah will have her PICC line removed and a port installed beneath her skin. It will be critical that her environment be and remain sterile. Michael and Rebecca (mom and dad) have been informed that Delilah may temporarily require a feeding tube when she goes home. They say this is very common. We would love for her to use Liquid Hope (organic whole foods meal replacement) - we are sorting out the insurance information right now.
http://functionalformularies.com/#sthash.P6blUWhz.dpbs
-See more at: http://www.youcaring.com/medical-fundraiser/-delilahstrong/162745/update/157460#sthash.NFNDKGkA.dpuf

From out family to yours:  our appreciation and gratefulness are beyond words at this time.  May you and yours be abundantly blessed for all your generosity in donations and prayers.

Cathryn

Solidarity

Lyllah loses her hair and mom and dad are in solidarity with her, but she is not happy.

Granddaughter's Update

Update from Rebecca/Mommy
"Good morning everyone, rounds just came:  Delilah's blood platelets are recovered almost to normal.  Her hemoglobin is still at 10. To top the counts off her ANC is 750!  There are talks about heading home late next week!!!  We will get a better idea of when after we talk to the doctors about the second phase..."

Bald is Beautiful
"Aunt Heather is at Children's Hospital right now - cutting Delilah's hair.  Please pray for strength!"

This just breaks my heart.  She (Delilah - my 3yr old granddaughter) is afraid of losing her hair and the time has come now.  I know Becca's (her mom) heart is breaking.  We all cry for this beautiful, innocent child.

Cathryn

Happy Easter (and update)

and blessings on you and yours.

Delilah had a rough day yesterday.  She slept most of the day because she wasn't feeling so well.  My daughter called me last night for a few minutes and she was so stressed out.  I told her she must take care of herself so she can take care of her baby and forget everything else.

From our family to yours:  thank you so very, very much for the cards, letters and gifts for Delilah.  We would like to thank you all personally but there was so much response to this we just can't possibly do it.  We just want you to know how precious each delivery was - more than words can express.

God Bless you and yours,
Cathryn